Coping with the Loss of Health: How My Son Survived Guillain-Barre Syndrome and Encephalitis


Without health, you have nothing. When you are healthy, you feel like you can accomplish anything. You have focus, energy, and drive. In contrast, when you are ill, you feel like you are functioning through quicksand and it takes everything in you to keep your head above the mud.

Before October of 2015, my son, Jy, was a healthy child. He was seven-years-old at the time. He had never even received antibiotics. He had perfect attendance in school. He played on a very competitive club soccer team. He was used to scoring many goals and being one of the fastest kids on the field.

Loss of Health

Jy Black encephallitis, Guillain Barre Syndrome
11-12-2015 Flight to Primary Children’s Hospital Salt Lake City

In October of 2015, my son had received the flu mist, and he developed a bad reaction to it. I had mentioned this situation in a previous post. I also wrote a heartfelt post on losing the image of a “perfect child.” He developed the flu, went into a coma (for about three weeks), and was paralyzed (quadriplegic). He had encephalitis and Guillain-Barre Syndrome. The flu mist has been taken off the market (so don’t stress about that), and he had a rare reaction.

Life After Loss of Health

Jy had to learn how to eat, walk, talk, and go to the bathroom all over again. When Jy first got home from the hospital, I was so happy to have him alive. I was in complete denial that anything was wrong with him. After all, he was walking, talking, eating, and breathing again. What more could I want?

I posted an update on Jy about six months after his hospitalization. With time, I learned that he struggled to sit still in school. He had trouble with his emotions and understanding jokes. Processing became difficult for him. He couldn’t react on the soccer field like he used to. He would fall over or get hurt easily. When Jy couldn’t understand something, instead of using his words, Jy would resort to crying. Kids called him cry baby. He would come home from school almost every single day in tears. He couldn’t sit to do homework. I had to give him mental breaks. We would work for ten minutes at a time, and I would let him run around the house to release his energy. Sometimes, he would just cry. I let him cry, and talked him through his emotions.

He didn’t like loud noises and had sensory perception issues. He developed ADHD, visual processing disorder, and auditory processing disorder. When Jy would get nervous, he would fidget with his fingers, chew on objects, or suck his shirt until half of the front was wet. He wouldn’t understand danger at times. Once, he hopped on the back of a running treadmill to get this lady’s attention because he thought she was me. He didn’t think to walk to the side and get her attention or even check if she was me. He scraped his chin and got a bloody nose from this incident.

Jy’s reading level dropped from about the 65% to the 10% for his age group. He went from almost double above average in math to average because he struggled to process story problems.

Jy needed over a year and a half of extensive traditional therapy, counseling (for his emotions), ADHD medication, other medication for his mood, and finally holistic medication, which he is still currently on. He started special education in January 2017 to help with his reading and processing.

How Does Jy Relate to You?

During Jy’s recovery, there came a point where I had to “wake up” and face reality or the truth. Jy may recover to the point where he won’t need special education assistance in school or play soccer the way he used to, but he is not there yet. I had to mourn over the loss of my child before his health injury. I couldn’t keep living in the past and pretending that he was his “normal” self. Jy wasn’t abnormal after his injury. I had to accept Jy’s new health so that we could rise up from there.

If you have a loved one or you have personally had a health problem (including mental) that has altered your lifestyle, then you can relate to this post. Here are a few steps that helped me get past the loss of Jy’s “healthy” self.

  1. Grieve. I tried for the longest to “be strong.” I thought being strong meant that I didn’t have to show emotions. This is far from the truth. Everyone has emotions. We aren’t robots and can’t turn them on and off. I allowed myself to feel every emotion that came to me. I had every right. My perfectly healthy child landed in a coma and paralyzed. You have every right to all of your emotions. You need to free them. 
  2. Get professional help. Once Jy got past the acute phase, I turned to any resource that I could for him (e.g., utilized his pediatrician, therapist, school teacher, and church teacher). My opinion on Jy was important, but it was also slightly biased because he was my son. I wanted to see all the good in him, so I looked for it. Taking the opinion of several people who worked in close contact with Jy, helped me get the necessary resources for him. If multiple people who worked with Jy indicated he needed something, he probably did. Get several opinions on the best resources for you. It’s best to not be in denial if you need help. Seeking the proper help could help you recover faster. 
  3. Plan/Act. Once I collected the evaluations of those who worked with Jy and studied the available resources for him, I came up with a plan. I didn’t want Jy to have too much on his plate, so we did therapy in a systematic fashion. We began with traditional therapy first and worked our way to holistic and psychological. Decide the best plan for you or your loved one and take the needed steps. You can always alter your plan along the way. (But you are always moving forward!)
  4. Reflect. There are times when I get frustrated or sad when Jy can’t read or play soccer as he used or his emotions are difficult to control. On days that are tough, I remind myself to reflect on how far Jy has come. Give yourself credit for how far you or your loved one has come. Have gratitude for your current health and look forward to getting better one step at a time.

We don’t get to choose our trials, but we can choose how we react to them. ❤️ Time to live YOUR best life with the health you have been blessed with.

Blog Collaboration on Loss

As I had indicated in my announcement on Monday, this is a collaboration post on the theme of Loss. If you are interested in reading other posts on “Loss,” please click on the links below to read more. Each blogger provides positive and helpful insights on how he/she coped with and conquered a loss. Know that you are not alone and there is a way to get through loss.

Here are the links to all of the collaborators:

134 thoughts on “Coping with the Loss of Health: How My Son Survived Guillain-Barre Syndrome and Encephalitis

  1. This really got to me. I can imagine how you must have felt. I felt horrible and devastated when my best friend was in a coma for almost two weeks with slim chances of surviving. So, I’m assuming it was worse in your case because it was your son.
    This is a truly touching piece. Everything heals with time. God bless you and your family.
    And know that you’ll always have my support.❤❤❤

    Liked by 4 people

    1. Jainey, It was VERY scary. The worst part is not knowing if the person is going to wake up or how he will wake up. Sorry to hear about your best friend! I hope she is okay. I didn’t read your post yet. Getting to it! Not sure if you wrote on that. Yes, it takes time to heal. God has given me a second chance with Jy, and I take advantage of it each day. He is a precious child! Thank you! Love all of you guys. So glad we connected! I know I have your support, Dynamite!!! ❤️​

      Liked by 4 people

  2. My God. I am so proud of you and your son Jy. How you take such a profound loss and transform it into a sermon for us all. Ipuna, I am so grateful to have found you here. Every word you type encourages me to shine as bright as can be. Blessings to you both. ♥️

    Liked by 4 people

    1. Andrea,
      Thank you! ☀️​❤️​ I’ve been blessed with a positive outlook on life. I’ll take it! I hope that I can help others see the glass full and not empty. We will always have trials, but it’s up to us on how we handle them. I’m very grateful to have met you as well. If I feel stress trying to intrude my space, I run to Andrea’s blog!!! Stress is forced to get away from me. Ha ha. You repel stress.
      Blessings to you and your family!

      Liked by 3 people

  3. I am so emotional right now Ipuna. I love you and the strong woman that you are. I wish you and Jy and your entire family a very happy and successful life. It is a wonderful post. And Im so so proud of you !!

    Liked by 4 people

    1. ❤️​ Only you could pull a post like this out of me, Taj! Thank you for putting the Loss family together or I wouldn’t have put my thoughts into this post.
      Life is good. Jy is a blessing, and I remember that every day that I still have him.
      I love my new WordPress family! Thank you for being an important part of it. Can’t wait to collaborate again!

      Liked by 3 people

  4. This really got to me. I can imagine how you must have felt. I felt horrible and devastated when my best friend was in a coma for almost two weeks with slim chances of surviving. So, I’m assuming it was worse in your case because it was your son.
    This is a truly touching piece. Everything heals with time. God bless you and your family.
    And know that you’ll always have my support.❤❤❤

    Liked by 3 people

  5. I know you didn’t post this for personal praise or accolades but you certainly do deserve them. What a blessing for Jr to have you as his mom, and you to have him for your son. Not everyone could or would handle the hand y’all were dealt as well as the both of you have handled it. God bless you both 🙂

    Liked by 3 people

    1. Thank you. I definitely don’t deserve praise, but I hope that my story can help others who may be going through a tough time with health. It feels like the world is ending when you are in a situation like this, but with baby steps, you can find a light to follow. Thank you for reading. Jy is a special child, and I thank God every day for letting me keep him a little longer. I feel that God does continue to bless our family. Thank you for all of the kind words. It means A LOT!!!

      Liked by 3 people

  6. I am lost of words, mother are so strong, that we can’t describe in words.

    My best and powerful wishes is for you all.

    My cousin, used to have illness when I was way young, I have vivid memory of his illness. I don’t know what was his illness, but it was he was healthy and all of a sudden he was bed ridden.

    Long story short, he recovered, and now living a healthy life got married.

    So I pray the same for Jy

    Liked by 3 people

    1. Thank you for your words of support. So sorry to hear about your cousin’s illness. It is tough to go from healthy to sick in such a short period. So glad he is doing well! That’s the best. Jy is improving. He is a strong boy. I pray he continues to improve and gets his reading and physical fitness back. Thank you!

      Liked by 3 people

        1. I love this. I’ve met so many great people through the blogging world. You are a special person. Thank you! My husband and I do pray. I love that you said we all have the same God. ❤️​ Beautiful and true.

          Liked by 2 people

  7. This is so emotional I can’t imagine what it must have been like for you! You’re a really strong person to share this with us! This is one of those times when words aren’t enough. So I’m sending prayers your way! Solute to your strength. Wishing you and your family the best.

    Liked by 3 people

    1. It took some time to share this. I definitely couldn’t do it a year ago. I hope it helps someone have optimism during a health trial. We have been blessed with so much, so thank you for the continued support. It means a lot!

      Liked by 3 people

  8. Health, even at its rudest robustness, is such a fragile element. Far too often, we take our good health for granted. And then, suddenly, it can be snatched away from us in an instant. In many cases, I think, an illness in the family takes a toll on the entire family. It’s at times like these, when we’re tested, that we really discover what we’re made of. You’ve clearly proven to yourself, and others, that you’re incredibly strong, brave, and compassionate. Your family is lucky to have you. Thank you for sharing this story. It couldn’t have been easy.

    Liked by 3 people

    1. Thanks, sis! Yeah, I felt good about sharing it. Normally, I dabble with his story here and there, but I don’t like to give a lot of information. I felt that it could help others this time, and he and I were strong enough to write about. I hope it does help someone else.
      The other bloggers wrote very well. Touching pieces. Thank you for checking them out.

      Liked by 2 people

      1. I know what you mean. Often times when we are “in” the situation, as your situation with Jy is still sort of on-going…it’s hard to write about it. Now you’ve had enough space away from the really scary moments to be able to write about it. Jy is so amazing and so brave! ❤️❤️❤️

        Liked by 2 people

  9. That moment when you are overwhelmed with emotions and left completely speechless. Am emotionally aroused right now. I mean, to passing through such an experience is something I pray never to find myself in. However, encountering someone that has triumphantly overcome such tragedy is simply a sight to behold. I must say, I am absolutely impressed at how you keep it together throughout the storms of life. And even more impressed at how you pull off a good displaying of yourself with that captivating smile that lights your readers’ day. I admire your strength, Ipuna. Remain blessed.

    Great piece! Thanks and Good Luck. 🙂

    Liked by 2 people

    1. Kingsley, Awe, your words touch my heart!!! Thank you! I have to work to be positive, and with time, it has become me. It truly helps me get through every day life. I appreciate bloggers like yourself. You are so supportive! Are you related to Ms. Dynamite, aka Jane? You all amaze me! I can’t believe how young you guys are!!! Truly wise beyond your years. I’ve been blessed to have you all come into my life. Such beautiful lights!

      Liked by 2 people

      1. You’re welcome. 🙂 Wow, that’s great – efforts do pay off. It sure does. Honestly, positivity is a massive propelling force that enables the ‘positive’ to shoot far in life. Wow, thank you – am flattered. I guess everybody should do the same. We’re all to play a part in each other’s success not scheme the downfall of another. I sure am – am a proud relative of Jane. Oh really, wow. Thank you so much for the extolment but, truly, it is God who deserves that praise. Well, you’re not alone in that – I ,too, am blessed at the mere fact of your existence. It is truly an honor having you in mine as well. 😀

        Liked by 2 people

        1. “Positivity is a massive propelling force that enables the ‘positive’ to shoot far in life.” This is wonderful! I’m definitely experiencing this. I have come across such positive bloggers. They propel me forward!
          YES! I agree. It’s much better to root for the success of others than to bring anyone down. God is great, and he brought us together. Jane is a WONDERFUL young lady. What a great family you guys have.

          Liked by 2 people

          1. 🙂 Thanks. Me too – I find it very fulfilling. Oh, wow. They sure have impacted you extensively – I can see, you are pleasantly optimistic. Oh, yes! It’s even much more Christ-like. He sure is. “A God with a plan to prosper us and give us a future we so desire…”(Jeremiah 29:11). Yes she is. She adds a unique spices to the family. Thank you, Ipuna – what a great friend we have! 😀

            Liked by 2 people

  10. I’m sorry to hear what you went through and I’m glad Jy’s recovering! I never thought a simple thing like flu mist vaccination could cause such a bad reaction, but then again, if one could be allergic to dust (I once had a friend with this), why not this? It’s really incredible how well you handled it; you’re definitely one of my role models. I hope Jy will have a speedy recovery. ❤

    Liked by 3 people

    1. Nicolle, This was the time that I was most grateful for my Pediatric Intensive Care experience. It helped me be part of the medical team and understand what he was going through. I also didn’t let people do too much on him, and I gave recommendations. What a blessing. I’ve been blessed with a second chance with him. I’ll take him any way I can get him. Thank you for your words of encouragement. I’ll take them all! ❤️​

      Liked by 3 people

  11. Ipuna, your piece is very moving, and I found a great deal of excellent advice here. That it’s important not to suppress your feelings, and give yourself permission to grieve, is a must…yet it’s very hard to do, because we’re socialized from early on to suppress our emotions. (Even those of us who don’t “take” to the socialization know that’s the norm in Western society, IMO.)

    I really hope that Jy will continue to get better. (I don’t know what else to say, other than that.)

    Do take care, Ipuna.

    Liked by 2 people

    1. What a great web log. I spend hours on the net reading blogs, about tons of various subjects. I have to first of all give praise to whoever created your theme and second of all to you for writing what i can only describe as an fabulous article. I honestly believe there is a skill to writing articles that only very few posses and honestly you got it. The combining of deaotsnrmtive and upper-class content is by all odds super rare with the astronomic amount of blogs on the cyberspace.

      Liked by 2 people

  12. Rising from ashes looks so cool in words and on paper but it’s not as cool as it looks. Line you’ve mentioned we are humans and not robots. Life gets really tough at times but it takes some courage to jump these hurdles.
    This story is really touching and I’m so glad that Jy is recovering. I have seen people ruin their lives due to minor issues and seeing how you’ve won your son back to life is just beyond words.
    People around d the world are so busy cursing their fate and messing up incredible lives. Yes, it’s so important to express emotions. Hiding emotions is never a solution to any problem.
    Everytime I read your posts I learn new things and I have done it today too! Thank you so much for sharing this story and I am waiting for that day when Jy will be living his dreams and I’ll get the chance to meet him and his mother who is his sunshine!

    Liked by 1 person

    1. Jothish! You should be a doctor poet! Your words are unbelievable! Thank you. I’ve been blessed to have you come into my life. We have a great positive group. We will go on to do great things and touch others. I agree 100% that it is hard for many to face trials and come out strong. It’s definitely a learned skill. I hope this post helped someone realize that it’s possible. Glass half full not half empty. 😃☀️

      Liked by 2 people

      1. God has really been kind to me to give me the opportunity to connect to really amazing people.
        There are always new problems sprouting each day but thanks to this family of bloggers I have learned to see opportunities in my weaknesses! Have a lovely day!😊😊

        Liked by 1 person

  13. A powerful account of how even in suffering, God has a way of showing us He’s present. I’m thankful Jy received the services he needed and that you had an openness in receiving them. As parents we do see things from our bonded perspective of our children and it’s so valuable to get others’ insights as well. It’s a wonderful way to care for Jy and yourself. You’ve inspired me to consider writing more about my story of loss. Blessings to you and your beautiful little guy.

    Liked by 1 person

    1. Patty,
      Thank you! I hesitate to share personal experiences, but as I learn and grow, I feel that it may help another person. It’s hard to talk about it during a trial. It has been a blessing being open to all of the services Jy has need. I am so thankful for my medical background so that I can steer his needs. At the same time, it’s hard being a parent and be an objective health care provider. 😃 You have a sweet spirit. I can definitely tell. I’m sure your experiences have and will reach many. Thank you for your lovely comment. Have a blessed day!

      Liked by 1 person






    Liked by 2 people

    1. Soul Ja! I need to hang around Jane. Everyone around her is AMAZING! Love you guys!
      Yes, it was REALLY hard watching my child be perfectly healthy to in a coma and paralyzed when he woke up. God gave me strength to get through it. I think the hardest part was not knowing if he was going to wake up. I hope my story gives someone else hope and a few ways to see the glass half full instead of half empty in tough situations. I appreciate you reading and your wonderful comment. It means a LOT! God bless you as well. ❤️

      Liked by 1 person

  15. Wow, I can’t believe this happened to you and how you surpassed this. You are truly brave for sharing your story and as a parent, it must have been heart braking to have gone through what you did. I have had health problems myself and still go through it and I know how hard and dragging it is when things according to you suddenly seem to stop but the world is constantly moving. So glad Jy is doing much better now and I pray for his health to come. You are one strong mama and you should be proud of yourself and Jy! 🙂 ❤

    Liked by 2 people

    1. Thank you, Alifya. It hasn’t been easy, but like you said, life keeps moving forward, so we have to as well. I’m sorry to hear about your health issues. I hope you find the best care that you can and can function at your best. Jy is great and continues to get better every day. It is much easier to share my experience now than a year ago. ❤️

      Liked by 1 person

  16. I can’t even imagine what your family has gone through. We all have something we are going through, but reading what other people are dealing with always seems to put it in perspective.

    I hope that Jy’s youth will be in his favor and aid in his recovery. There is no doubt in my mind that you are doing a great job aiding him. Big hugs!

    Liked by 2 people

    1. Thank you! Yes, I have fell in love with the blogging community lately because many personal stories and insights have made me examine my life and appreciate what I have, even in the tough times. Jy will continue to heal and we will get him the resources that he needs. He is a blessing to our family, and I remember that everyday. I’m grateful for a second chance with him. Big hugs as well!!! ❤️​☀️​

      Liked by 3 people

    1. He is doing better. His processing for school or in sports isn’t as fast as it used to be, but it is improving. He is sensitive to touch at times and doesn’t comprehend jokes are certain phrases outside of the first layer, but it’s getting better too. Day by day, he is improving. Thank you for asking!

      Liked by 2 people

  17. Finally had time to read this. Thank you for sharing this. I am really emotional. I didn’t know Jy was in coma for 3 weeks! I thought it was only 3 days. But I’m happy that he is recovering fast and going back to his normal self. Hope our families get to meet someday. Send my regards to Jy. God bless you and your family.

    Liked by 2 people

  18. I wish your son well improvement and everything imaginable for the future, every fate has a sense and any diseases have also one way to heal. win with God and prayers all is well, I am touched

    Liked by 2 people

      1. Nothing to thank or to-thank I have done nothing except (small message) and offer before the love God to all children (people) in need and help their family!!!!! Thank you very much. Sunny Week!!!! Still

        Liked by 1 person

  19. Wow, I’m so sorry you had to go through this! Your story really related to me because I’ve developed health issues/disabilities over the years (not as difficult as the ones your son has dealt with, but ones that have still turned my life rather upside down). I could definitely see the wisdom in the points you made. I’m so thankful for my family, my church – everyone who has been there to help me! I wish you the best as you continue to help your son.

    Liked by 1 person

    1. Awe, thank you! I’m sorry to hear about your health issues/disabilities. It is never easy to deal with the loss of health or to have a disability but feeling sad or getting upset with it solves nothing. It’s normal to have these feelings, so that okay, but once you get past that, you have to learn how to live your best life with the tools you have. That’s what I try and do with Jy. I hope you are doing well.


  20. Your post brought tears to my eyes. Much connection. I wrote a comment but, it told me i had to signup to I signed up then my comment is gone! Should I write it again? Please let me know. Also, plz let me know how I can load graphics.

    Liked by 1 person

    1. That is weird. I received your comment here. I’m not sure why the other one didn’t take? I use an emoji app to put in emoji’s, but I don’t know how to upload other graphics. Thank you for stopping by. That was a rough period in my life, but I have a second chance with my son. I’m so grateful for it!


      1. I had written something like: Your post brought tears to my eyes. two years ago my grandson Cory was murdered. The grief was unbelievable. Double the grief for my grandson and for my daughter, but! Father carried me amazingly by the power of HIs love. Hope, there is always hope.

        Now, as I read your post I can see HIs work. The best is yet to come for you and for me and for all of us His children.

        That day I had written the post Insanity Abolished! I posted it. I will repost it now. I know the writings He is giving to us are to encourage each other. Thus He encourages me to post it wherever He leads me to post. Here it goes:

        Insanity Abolished!


        Physically, Mentally, Spiritually.

        Life & Strength.

        The Harvest In My Soul…

         The Plan Of Restoration To The Original Intent For Our Creation has begun in ONE. It shall continue One by One.

        Journal—An ongoing dialog between thia/Basilia and Master Yahuwah/Yahushua. …

        Tuesday, July 4, 2017 at 8:38 am

        O my Father—O Father of mine? It is such comfort to live under Your loving control and dominion. Earlier this morning, while I was in the middle of a sentence, I spotted a big roach. It went under my bed! Panic! I loathe those varmints! I stopped writing. I lifted my mattress. I saw nothing. Went back to my writing. After a few minutes, the varmint showed up again! I grabbed a shoe, but! I missed. The varmint went into hiding again. Where is it now, my Father?

        O my Father—O Father of mine? You know all about my fears. I fear a roach infestation in my lovely apartment. I called Ahmad, but I did not get any answer. Then? It came to me: “Father? You are the only one who can control these varmints. There is not much that Ahmad can do, but! You can keep this roach from infesting this lovely apartment You have gifted to me. I thank You for taking control of this matter.”

        Tuesday, July 4, 2017 at 10:40 am

        New title for Insanity Abolished! Subtitle: Restored. Physically, Mentally, Spiritually.

        Head Line: The Plan Of Restoration To The Original Intent For Our Creation has begun in ONE. It shall continue One by One.

        Hello everybody! This is the most appropriate day to post a summary of my health restoration. Yeah, I talk about myself primarily, why? Because I am the product the Almighty Creator of our beings is offering to you all! How ‘bout that?

        Health restoration? Mine took every bit of 32 long years. Some of you were not even born when the Almighty started the arduous task to restore my health. No kidding! I pay attention to the meaning of numbers and number combinations because the Scriptures are specific with the mention of numbers for everything written therein.

        So, the combine number of 32 is, 3+2=5. The Number Five – Grace and Preparation. Now, this year I am walking on my 78th birthday. The combine number of 78 is, 7+8=15=3×5. That means 78 is Grace and Preparation multiplied 3 times! Wow! But! The Number Seven, Completeness and Rest. The Number Eight – Newness and Cycles.

        All means:

        Grace and Preparation
        Completeness and Rest
        Newness and Cycles
        Alright, let’s keep that in mind for this summary. Because that is the sequence of events in the process to restore my health physically, mentally, and spiritually. In retrospect, I see now how the physical, the mental, and the spiritual were not restored separately. Rather it was a progressive series of events that took place for my complete restoration.

        These series of events were precisely scheduled by the Master Mind Who created me. Dear Reader, relax. I will now abide by the rules of human attraction and attention span. I will only give you a lil at the time.

        Wednesday, July 5, 2017 at 11:23 am

        Well, O my Father, You know what I been doing. Been working on the cover graphic for my new title and subtitle. I think I got it now. I am ready to publish what I got so far. But I am open to any changes You quicken to me. Also, I wait on You as I go along on where to publish. Your leading is so accurate. It leaves me dumbfound! You are an awesome Yah!

        His love in my heart for all, thiaBasilia.

        Liked by 1 person

        1. Thank you, ThiaBasilia. I’m am so sorry about your grandson, Cory. ❤️​ Thank you for your kind words and encouragement. I truly appreciate your support and wisdome.


  21. Thanks my friend. Likewise. I just had a couple hours session with my daughter. It’s a delight to see the work of our Father in our lives. Truly amazing how He is healing our wounds. He puts our tears in a bottle and uses them to water the gardens of our lives in His Presence. Much love. thiaBasilia. 🙂

    Liked by 1 person

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